tag:blogger.com,1999:blog-5000861130039293919.comments2022-08-08T18:17:07.469-04:00A View From the BoundariesAlexander Cheezemhttp://www.blogger.com/profile/08446703016516906469noreply@blogger.comBlogger287125tag:blogger.com,1999:blog-5000861130039293919.post-47640000131702654552014-02-09T06:53:42.902-05:002014-02-09T06:53:42.902-05:00The latter article is at http://onlinelibrary.wile...The latter article is at http://onlinelibrary.wiley.com/doi/10.1576/toag.5.1.34/abstract (they've reorganized their webpage). The former, well, I can't remember the full citation and can't seem to track it down right now.Alexander Cheezemhttps://www.blogger.com/profile/08446703016516906469noreply@blogger.comtag:blogger.com,1999:blog-5000861130039293919.post-44252040169353186432013-11-12T19:01:09.229-05:002013-11-12T19:01:09.229-05:00Oh my gosh, I had no idea people thought hemorrhoi...Oh my gosh, I had no idea people thought hemorrhoids were a good thing! (I guess it makes sense, following the logic of too much blood = bad, but I'd never heard that particular thing before! Sounds like I need to read that book; I find medical history really interesting anyway.)<br /><br />I'm afraid I can't read either of your articles about menstrual suppression, though! One has expired, and the other just goes to the page for the current issue of that journal. What were their arguments, if you can remember?Lindsayhttps://www.blogger.com/profile/10860246538349067232noreply@blogger.comtag:blogger.com,1999:blog-5000861130039293919.post-66872402138271480192013-11-12T18:40:17.315-05:002013-11-12T18:40:17.315-05:00Also: my mom was a nurse before she had children, ...Also: my mom was a nurse before she had children, and was pretty active in the Autism Society of Iowa when we lived there. She once told me about a time someone came up to her and told her about how they were chelating their son, and my mom knew enough to be horrified. The woman told her something like, she had seen images of her son's liver and how "active" it was now, and my mom --- in her head at least --- was like, "Yeah, that's not good. His liver is active because THAT IS THE ORGAN RESPONSIBLE FOR REMOVING POISON, ya moron!" This would've been either late '80s or early '90s, probably early '90s. Her son is a grown man now, if he's still alive.Lindsayhttps://www.blogger.com/profile/10860246538349067232noreply@blogger.comtag:blogger.com,1999:blog-5000861130039293919.post-47440011142864386672013-11-12T18:35:38.273-05:002013-11-12T18:35:38.273-05:00I was not aware that "helminthic therapy"...I was not aware that "helminthic therapy" was a thing.<br /><br />I am morbidly amused that they have to call it that --- I suppose if you just said "worms" you wouldn't get any customers?<br /><br />You laugh so you won't cry.<br /><br />(Seriously, it's a major humanitarian cause to try and GET RID of parasites in the developing world, because of all the suffering and disability they cause! So some people in the developed world, who do not know this, are <i>deliberately</i> introducing those same critters into their own children's bodies? I don't have words.)Lindsayhttps://www.blogger.com/profile/10860246538349067232noreply@blogger.comtag:blogger.com,1999:blog-5000861130039293919.post-25593347030555050642013-11-12T18:27:30.567-05:002013-11-12T18:27:30.567-05:00Hi, Alexander. I hadn't seen your blog before,...Hi, Alexander. I hadn't seen your blog before, which is why I am commenting on such an old post.<br /><br />Thank you so much for spelling out, as clearly as a person <i>can</i> spell it out, what is and is not child abuse under the law.<br /><br />Unfortunately, I think a lot of people --- judges, lawyers, jury members and most definitely the person who wrote the letter you reference --- give parents WAY too much leeway if they believe they have "good intentions." (Scarequoted because a lot of things that pass for good intentions are not things I would give that label to --- thinking of excessively strict discipline because the parent thinks the Bible mandates it, and also, obviously, giving one's child quack autism cures.)<br /><br />I think children would be better served if, instead of trying to figure out what was in the parents' heads and have that be the determining factor of whether or not abuse happened, that the relevant criterion be the effect on the child in question. Lindsayhttps://www.blogger.com/profile/10860246538349067232noreply@blogger.comtag:blogger.com,1999:blog-5000861130039293919.post-84749716011694600412012-11-01T16:01:18.610-04:002012-11-01T16:01:18.610-04:00I'm glad you enjoyed it. :-)
Also -- sorry yo...I'm glad you enjoyed it. :-)<br /><br />Also -- sorry your comment took so long to clear moderation. I didn't get notice, and... well...Alexander Cheezemhttps://www.blogger.com/profile/08446703016516906469noreply@blogger.comtag:blogger.com,1999:blog-5000861130039293919.post-79814842782127491772012-09-13T10:22:23.515-04:002012-09-13T10:22:23.515-04:00*cackles in delightful laughter* Brilliant! Absolu...*cackles in delightful laughter* Brilliant! Absolutely brilliant! I've been searching the web for inspiration on a movie character to diagnosis for class, but I never expected to stumble across THIS! This little treasure ought to be framed! Excellent writing -- and now I have my inspiration. Don't worry, I'll leave Willy Wonka to you, but Alice in Wonderland is still fair game.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5000861130039293919.post-62643091918121874512012-08-18T19:01:33.153-04:002012-08-18T19:01:33.153-04:00Great list!
It's amazing what people will do ...Great list!<br /><br />It's amazing what people will do while searching for "a cure".<br /><br />JoeClub 166https://www.blogger.com/profile/01816977079856902634noreply@blogger.comtag:blogger.com,1999:blog-5000861130039293919.post-18703126177222885202012-06-03T17:34:24.545-04:002012-06-03T17:34:24.545-04:00Actually, they're all _from_ quackfests like A...Actually, they're all _from_ quackfests like Autism One, DAN! groups, and so on. In order, they're referring to:<br /><br />-- Megavitamin "therapy" (or some forms of it, anyway)<br />-- HBOT<br />-- Marijuana (as an autism treatment)<br />-- IV chelation<br />-- Helminthic "therapy"<br />-- The Lupron protocol<br />-- OSR#1<br />-- MMS (drunken)<br />-- MMS (enema)Alexander Cheezemhttps://www.blogger.com/profile/08446703016516906469noreply@blogger.comtag:blogger.com,1999:blog-5000861130039293919.post-28973489652335770842012-06-03T17:21:39.646-04:002012-06-03T17:21:39.646-04:00That is a truly horrific list. But it is not the s...That is a truly horrific list. But it is not the sort of thing you find on show at quack feasts like Autism One. They refer to things like MMS, chelation and HBOT. Any chance of a list of which "therapies" do what on your list?mike stantonhttps://www.blogger.com/profile/13718362491689089037noreply@blogger.comtag:blogger.com,1999:blog-5000861130039293919.post-32626875810273622992011-11-02T21:32:06.221-04:002011-11-02T21:32:06.221-04:00Anonymous,
When we fail to condemn attitudes such...Anonymous,<br /><br />When we fail to condemn attitudes such as these, we encourage them. It's really that simple.Alexander Cheezemhttps://www.blogger.com/profile/08446703016516906469noreply@blogger.comtag:blogger.com,1999:blog-5000861130039293919.post-15191216643708524142011-11-02T21:24:31.286-04:002011-11-02T21:24:31.286-04:00I have worked in ED for many years..seen abuse fro...I have worked in ED for many years..seen abuse from many angles.The parent financially abused,the child taken `care of` for financial gain...regardless of their mental ability.I have seen people at their wits end,and as I gathered up their child,their infirm parent,they were overwhelmingly grateful.For those of us who have a grounded and solid approach to life,I would say,read Atticus,from To kill a mockingbird.Walk a mile in my shoes....Fact is,abuse happens.Its sad,its resulted in death and suffering,but are we really in a position to judge?? I am in no way condoning it,I am just askin each of us to look a bit more closely at what we have and what we can offer.Sometimes the safest path is to leave the thing you love the most.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5000861130039293919.post-55024076794802586452011-11-02T04:58:48.103-04:002011-11-02T04:58:48.103-04:00It's why I think you shouldn't get a free ...It's why I think you shouldn't get a free pass into the autistic community just because you have an autistic child.<br /><br />We threw these excuses for murder out a long time ago - at least insofar as murdering 'normal' adults and children. There are always other options than killing your child. At one emergency department a few years ago a woman walked in with 18 month twins, said to the triage nurse 'I can't cope. It's this or I'll kill them' and walked away, leaving them there.<br /><br />I can accept that you can be stressed beyond endurance by a child, but surely handing them over to someone else is a better answer?<br /><br />I think these cases touch on another hidden aspect of parenting: the parent who hates their child. Somehow 'I hated her so I killed her' doesn't seem to be considered an explanation, but it seems to fit the events very well indeed.<br /><br />More on parenting at my place: <br />http://autistwriter.wordpress.com/2011/10/31/parental-concerns/Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5000861130039293919.post-85649943614985462712011-11-02T00:25:05.542-04:002011-11-02T00:25:05.542-04:00Thank you for having the courage to write about su...Thank you for having the courage to write about such things - they do need to not only be written about, but also discussed and acknowledged by the broader community. I know this was not an easy post to write, which is another reason to thank you for it. <br /><br />I too was horrified at that JRC mother's statement - I think my thought was, "that is not a 'civilized human,' that is a scared and scarred 'trained seal' and one day I hope he is free of the JRC and you and may then be able to heal and free himself of his past."<br /><br />The other case, I remember at the time getting into an argument with a friend (who is also Autistic) because he was taking the approach that she just needed more support. I won't rehash the argument here because I am sure you can imagine it. But my thinking basically comes down to, "How do we support people who have to deal with such horrible parenting - and how do we get others to acknowledge it when some of our own people would seem to prefer to explain it away?"<br /><br />I think the reasons for that are complex, varied, and troublesome. But that is part of one thing I think will emerge as one of the more important things to come out of ASDay - and why it's so important, which is what I plan to write my post on - except I have had a large headache most of the day and am only now getting to a place to write coherently. <br /><br />Again, thank you, and I hope you will be able to write the rest of what you wanted to write at some point. Bravo!Emilyhttps://www.blogger.com/profile/10165667609402885638noreply@blogger.comtag:blogger.com,1999:blog-5000861130039293919.post-28810547935725918672011-09-23T17:07:29.999-04:002011-09-23T17:07:29.999-04:00I refer you to something I wrote earlier, a lot ea...I refer you to something I wrote earlier, a lot earlier http://www.larry-arnold.net/Neurodiversity/Mission/Essay.htm<br /><br />There you go, I came across an interesting parable recently about a community of saints and holy men, naturally they are so much more perfect than us sinners here below, but they still find things to beat each other up over, for the slightest deviance bears all the same social opprobrium of the grossest criminality back on earth.Larry Arnold PhD FRSAhttps://www.blogger.com/profile/05074432718592268750noreply@blogger.comtag:blogger.com,1999:blog-5000861130039293919.post-45224984991147873342011-07-15T23:21:42.344-04:002011-07-15T23:21:42.344-04:00It happens... between school and work, I couldn...It happens... between school and work, I couldn't even think about blogging when I got home. Though I do miss your insights, it is better not to burn out.xinehttps://www.blogger.com/profile/04954733013018380971noreply@blogger.comtag:blogger.com,1999:blog-5000861130039293919.post-28250957957166195892011-01-23T21:16:27.944-05:002011-01-23T21:16:27.944-05:00Alexander, I used to slap up some of my academic w...Alexander, I used to slap up some of my academic work to my blog .. not for others' interest, but so that I could find it later.Liz Ditzhttps://www.blogger.com/profile/03455722013211350247noreply@blogger.comtag:blogger.com,1999:blog-5000861130039293919.post-59949487497425548402011-01-14T11:50:29.840-05:002011-01-14T11:50:29.840-05:00Yeah, it was incredibly painful. I had a lot of tr...Yeah, it was incredibly painful. I had a lot of trouble writing about it because of that (and a couple of other factors).<br /><br />Fortunately, the more recent news is somewhat more heartening (if rather mixed): they've managed to identify some of the people responsible... but one of them may get off.<br /><br />For more, see:<br /><br />http://latimesblogs.latimes.com/lanow/2011/01/sheriffs-detectives-meet-with-tipster-who-provided-video-of-attacks-on-severely-disabled-women.html<br /><br />http://www.latimes.com/news/la-sexassaults7-m,0,7811296.story?track=rss<br /><br />http://latimesblogs.latimes.com/lanow/2011/01/disabled-woman-sexually-assaulted-on-video-very-traumatized-lives-extreme-fear-detectives-say.html<br /><br />http://latimesblogs.latimes.com/lanow/2011/01/one-man-arrested-another-located-behind-bars-in-connection-with-sexual-assaults-of-disabled-women.html<br /><br />http://latimesblogs.latimes.com/lanow/2011/01/prosecutors-ask-investigators-for-more-evidence-in-case-of-assault-on-severely-disabled-woman.html<br /><br />http://latimesblogs.latimes.com/lanow/2011/01/prosecutors-ask-investigators-for-more-evidence-in-case-of-assault-on-severely-disabled-woman.htmlAlexander Cheezemhttps://www.blogger.com/profile/08446703016516906469noreply@blogger.comtag:blogger.com,1999:blog-5000861130039293919.post-15784766197418391722011-01-14T11:29:05.340-05:002011-01-14T11:29:05.340-05:00This was incredibly painful to read. And people wo...This was incredibly painful to read. And people wonder why I don't want to put my brother in institutional care when he's an adult.xinehttps://www.blogger.com/profile/04954733013018380971noreply@blogger.comtag:blogger.com,1999:blog-5000861130039293919.post-59296765034542920462011-01-08T17:08:16.239-05:002011-01-08T17:08:16.239-05:00Yeah, the things happening today are really dishea...Yeah, the things happening today are really disheartening. Just yesterday, a woman's body was found in a large trash container in this city. No description or identity was given, just that sad fact. Apparently, life is cheap and insignificant to many people.Clayhttps://www.blogger.com/profile/09424036357963352399noreply@blogger.comtag:blogger.com,1999:blog-5000861130039293919.post-86668040451202042712011-01-07T14:59:00.214-05:002011-01-07T14:59:00.214-05:00Harold isn't big on evidence. That explains hi...Harold isn't big on evidence. That explains his popularity with the anti-vaccine community.Tyler Droodhahhttp://www.anagramgenius.com/server.htmlnoreply@blogger.comtag:blogger.com,1999:blog-5000861130039293919.post-79356136658068086642010-11-21T23:10:42.006-05:002010-11-21T23:10:42.006-05:00Hi, Alex.
I certainly haven't read the book, ...Hi, Alex.<br /><br />I certainly haven't read the book, and don't plan to. I'll take your word on the rest of it. <br /><br />Take care. <br /><br />JoeClub 166https://www.blogger.com/profile/01816977079856902634noreply@blogger.comtag:blogger.com,1999:blog-5000861130039293919.post-42779839466362179952010-11-21T20:11:12.162-05:002010-11-21T20:11:12.162-05:00Joe,
If they were just arguing that you shouldn&#...Joe,<br /><br />If they were just arguing that you shouldn't impose your beliefs on clients, arguing for the importance of broader context, etc., I'd agree with you. As I've observed, however, they were not.<br /><br />Besides which, that one quote wasn't anywhere near central to my objections to the book. it's phenomenally *bad* on so many levels that it's not even funny. That quote was just one example of *many*, and selected mostly because of how easy it is to quote (and explain).Alexander Cheezemhttps://www.blogger.com/profile/08446703016516906469noreply@blogger.comtag:blogger.com,1999:blog-5000861130039293919.post-50695617002384417762010-11-21T18:49:28.101-05:002010-11-21T18:49:28.101-05:00When people are sick, or stressed, I find that it&...When people are sick, or stressed, I find that it's important for them to put decisions into the context of their lives. This context may include religious beliefs, a general belief in a higher power not grounded in a particular religion, other beliefs on what it means to be a member of the human race, or even a belief in The Flying Spaghetti Monster. <br /><br />I consider all of the above as subsumed under the greater heading of "spirituality", and still don't see the book's statement as being particularly egregious. Teachings like this are fairly common in clinical ethics classes. The point is to a) not impose your own world belief on the patient, b) realize that whatever is happening with the patient takes place in a much greater context, which involves whatever their world view is, as well as the relationships they have with family and friends, and c) assist the patient in putting whatever the current problem/situation is into whatever core values they hold, so they can make a decision that is good for them. <br /><br />The book appears to be a brief "how to" book, and the authors (as I noted) seem to be light in terms of their ethics credentials. We agree that these are no Socrates, Locke, or Childress here. Still, I still think the "spirituality" objection is perhaps not so bad, afterall<br /><br />JoeClub 166https://www.blogger.com/profile/01816977079856902634noreply@blogger.comtag:blogger.com,1999:blog-5000861130039293919.post-35267434964061015922010-11-20T23:58:49.254-05:002010-11-20T23:58:49.254-05:00Joe,
The comment about spirituality is in the con...Joe,<br /><br />The comment about spirituality is in the context of a discussion about the importance of involving the client's religious beliefs in therapy. A "broader definition" is not applicable -- the context makes the meaning readily apparent.<br /><br />As for the rest of the book -- as I note above, the book skimps (EXTENSIVELY) in understanding WHY the ethics codes are the way they are. A person who learned solely from the book would have no understanding whatsoever of the various controversies and disputes in modern clinical ethics. They would have no understanding whatsoever of the ethical considerations that went into writing the ethics codes (and why various people DISAGREE with them). Etc., etc., etc.Alexander Cheezemhttps://www.blogger.com/profile/08446703016516906469noreply@blogger.com